Date Range
Date Range
Date Range
I am very grateful for having the American Porphyrias Foundation in our lives. They provide much needed information to individuals, families, and doctors alike. Dr Gregary Edwards, PhD and family. The American Porphyria Foundation empowered me to understand everything about my illness. Just knowing there were others like me in the. Community that had regained their health, gave me hope that no matter how bad it got, one day I could be healthy again.
The APF has given me so much confidence and has helped me not be ashamed of having Porphyria. I have gained an amazing family who I can confide in and who understands me. The APF is awesome and are my lifesavers! Never be ashamed of being different. Different helps your light shine through. The APF and Doctors have been a blessing because I got the right medication for me Panhematin works. Thank You APF! Carlos Johnson, AIP.
Tonbo Designs
Frias, Nicolas
116 Caledonia St
Sausalito, CA, 94965
US
This blog is dedicated to all the Porphyria patients worldwide. Friday, April 13, 2018. My rare diseases have taught me patience. Before I became sick, it seemed as if I was always in a rush. Now I realize it is important to slow down and realize life is about a journey. My heart breaks for .
I am very grateful for having the American Porphyrias Foundation in our lives. They provide much needed information to individuals, families, and doctors alike. Dr Gregary Edwards, PhD and family. The American Porphyria Foundation empowered me to understand everything about my illness. Just knowing there were others like me in the. Community that had regained their health, gave me hope that no matter how bad it got, one day I could be healthy again.
The APF has given me so much confidence and has helped me not be ashamed of having Porphyria. I have gained an amazing family who I can confide in and who understands me. The APF is awesome and are my lifesavers! Never be ashamed of being different. Different helps your light shine through. The APF and Doctors have been a blessing because I got the right medication for me Panhematin works. Thank You APF! Carlos Johnson, AIP.
Enter your email address to follow this blog and receive notifications of new posts by email. Posted by Laura Tickle on January 12, 2014. Please have a nosey through our fifth issue of the publication, and anticipate next years one.